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Do you feel you're a minority living with chronic illness?

January 21, 2008 by Rosalind Joffe 4 Comments

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Martin Luther King (check out this website) was my hero when I was a teenager in the 1960’s. He convinced me that an individual can make the world a better place. Sound sappy?

I hope not — but I have to tell you that every moment that I spend coaching someone who is determined to stay successfully (not just minimally) employed makes me realize how critical it is to hope and believe.

It’s as a member of a minority – one that is race and religion blind – that I’m thinking of Dr. King today. Did you know that 90m. people in the U.S. live with a chronic illness? And too many are socially and economically disenfranchised — Why?<p/>

Because of pervasive and wrong headed ideas about our capabilities, deep rooted concern about motivation (or lack of it), and a real failure on any part of our economic system to change this. Sound familiar? All minorities could say the same.

Many of the people that I coach are in career transition because chronic illness has made it impossible for them to do the jobs they could once do well.A mother emailed me today asking if I can help her son who is about to graduate high school. She lives in Canada and is looking for resources that will help him figure out how he can work and support himself given the autoimmune diseases he lives with. Does anyone know of any resources for career resources for people with chronic illness in Canada?

We, the chronically ill, need to know that being successful in work is not a pipe dream — even if the economic system isn’t set up to support this. That’s not heroic – we’re just trying to keep getting a piece of the pie.

Speaking of heroes, Joan Friedlander , my co-author and fellow blogger on, KeepWorking Girlfriend!, wrote about Richard Cohen’s new book, Strong at the Broken Places. He profiles 5 “heroes” who live with life threatening chronic illness. I haven’t read it yet (although I read Blindsided, also by Cohen). Have you read it? Let us know (comment)

Share your thoughts. Does living with chronic illness take heroism? Who is a hero for you?
Rosalind

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Getting old isn't pretty but that's not really the problem.

January 20, 2008 by Rosalind Joffe 8 Comments

Everyone in New England (including my family) is watching the Patriots win again but I’m writing a blog.  I can’t get my Dad off my mind. That’s because he’s lying in his hospital bed,  breathing through a tube and slowly dying.  This afternoon, he motioned for me to come closer so he could whisper aRead More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness

Getting down with what gets in your way

January 16, 2008 by Rosalind Joffe Leave a Comment

It’s that time of year again (a new year) and I find myself thinking about what has to get done … and what happens along the way.   From the first conversation that I have with a prospective client, we’re talking about goals, desired outcomes, unfulfilled promise.  And it generally boils down to the same thing:Read More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Bunions, like ulcerative colitis, have surgical options.

January 13, 2008 by Rosalind Joffe Leave a Comment

When my podiatrist diagnosed bunions and a hammer toe, I figured it was just one more way that my body doesn’t behave as it “should”. Like the ulcerative colitis that I’d lived with, there didn’t seem much I could do to prevent it from getting worse. I’d worn orthotics for years (for very flat feet).Read More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

New Year Thoughts

December 31, 2007 by Rosalind Joffe Leave a Comment

Working with chronic illness. Who is driving your bus? Do you feel like you’re driving in circles – or someone else is driving this instead of you? I want to hear your thoughts – we all want your comments. Click on the comments on share with others what you find works. Here are my thoughtsRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Do you take vacation if you're WORKING (with chronic illness)?

December 23, 2007 by Rosalind Joffe 1 Comment

A client just emailed me saying that he decided not to take this week off as he’d planned  —  he’s going to keep working since he’s feeling well  (he’s got hypertropic cardiomyopathy). He’s a software marketing executive  and he figures he might as well take advantage of it. I found myself thinking, I guess that’sRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

I'm Tagged on a Meme.

December 10, 2007 by Rosalind Joffe 7 Comments

I’ve been “tagged”. I was wondering if I’d ever get to be tagged. And then, tah dah, How to cope with pain tagged me. If you’re not a blogger, you must be thinking – HUH? What’s a meme? Bloggers have this funny language. Basically this is like those chain letters we passed around as kidsRead More

Filed Under: Musings on LIfe with Chronic Illness

Do your friends at work make work a less stressful experience for you?

December 5, 2007 by Rosalind Joffe 2 Comments

Great thing about reading other blogs is that I find articles I wouldn’t have seen otherwise. A favorite blogger of mine, Kerri Morrone, at Six Until Me (click on this link) mentioned this article by Tara Parker Pope at the New York Times Blog, The Value of a friend in the next cubicle. The pointRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

So how is a computer crash like a body crash?

December 3, 2007 by Rosalind Joffe 1 Comment

The fact is that most people nod knowingly when you tell them your computer isn’t working –  and they’re quick to share their computer horror stories. But when your body crashes from a chronic illness flare? You get that blank stare –HUH? My client, “Janet”, just spent 10 days in the nether world of “downed”Read More

Filed Under: Musings on LIfe with Chronic Illness, Talking about it, Working with chronic illness

Are you Thankful about something or anything?

November 30, 2007 by Rosalind Joffe 1 Comment

Calls to all you chronic painers and chronically illnessers out there to check on this month’s blog carnival on How to cope with pain blog. There are some terrific bloggers writing in this, with links to this topic and you’re sure to get some inspiration, ideas — and at least a few more distractions inRead More

Filed Under: Musings on LIfe with Chronic Illness

Holidays include office parties that you don't want to go to

November 26, 2007 by Rosalind Joffe 3 Comments

Thanksgiving is over and we’re entering the serious party season! I’m talking to clients who are feeling an all too familiar weariness – especially at work – that crops up this time of year. I know. Who wouldn’t feel this way when you’re “fighting” daily chronic pain, fatigue — or a body that isn’t workingRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Still cooking with chronic illness

November 21, 2007 by Rosalind Joffe 9 Comments

Thanksgiving — and it’s my turn to host. The “immediate family” is up to 18. Three generations — and the next generation has started to multiply. So, here’s the thing. I’ve lived with multiple sclerosis for 28 years – since I was 28 — and it’s always been hard to stand on my feet forRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Technology snafus, chronic illness snafus. Are you ready to pull out your hair?

November 7, 2007 by Rosalind Joffe 2 Comments

My apologies for those who received the last few posts in gobbledeygook.  That wasn’t my intention (if you didn’t read the last post about intention, you should!) But as we know, even with the “right” intentions, things can still mess us up. Technology does it. And so does chronic illness. Have you found that whenRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Let's hear it for a success story! Are you "… speaking Japanese"?

October 31, 2007 by Rosalind Joffe Leave a Comment

I’m still waiting to get some responses to “Daddy Days”. Doesn’t anyone have a positive story to share? Oh, come on Here’s a tidbit from my story. It took me 20 years, but I finally got it right. I could work, stay healthy and DO what I love — this business, cicoach.com. I get toRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

Oprah: Need a career coach now that you have a chronic illness?

October 25, 2007 by Rosalind Joffe 5 Comments

Amy T, at Diabetes Mine, diabetes (and other diseases) info gold mine made me aware ofOprah’s newest interest: the thyroid. Oprah… trend setter or trend spotter? In October issue of “O” , Oprah disclosed her “thyroid condition”. When Oprah learned of this diagnosis (oh, so that’s why I’ve been tired and gained so much weight!),Read More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Coaching to "win" — can you beat it?

October 23, 2007 by Rosalind Joffe 2 Comments

I have to share a web site with you, Beat Chronic Illness.com. Just because I’m intrigued with the concept of “beating” this thing called chronic illness. I don’t talk with my clients about the illness part of their issues much — but we do talk a lot about their attitude. Nicole seems convinced that whatRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Who is managing your health, anyway?

October 3, 2007 by Rosalind Joffe 8 Comments

I spend a lot of my day talking with people who are either employed or are looking to be employed again, quickly. As a coach, my job is to ask good questions and be sympathetic.  But, if I hear one more person tell me that she has to keep her job (or take a job)Read More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Transition… It can be a tough balancing act

September 30, 2007 by Rosalind Joffe 3 Comments

Great post on one of my favorite bloggers, Pamela Slim / Escape from Cubicle Nation. 8 Strategies to get the most from painful or awkward life transitions . About to have her 3rd baby, she offers great ideas for going through those times when you’re experiencing change and it puts you off balance. She evenRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Riding the waves? Here's an oar

September 23, 2007 by Rosalind Joffe 4 Comments

This morning, I had an epiphany as I drank my latte (mmm – gotta’ love my nespresso). Looking at a picture on my desk taken 15 years ago– our family holiday photo — I saw a woman with a prednisone moon face, looking tired and frail. I had two kids in elementary school, was 43,Read More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness, Young with Health Problems

Bad vibes using Handicapped Parking … with not-visible disability

August 21, 2007 by Rosalind Joffe 6 Comments

At 6:30am, I piled my body into my husband’s mini cooper to take him to work (my car was being fixed). I’d not driven it before and the big surprise came when I remembered why I no longer get a manual transmission car. Oh, that’s right. I have very numb feet and can’t feel aRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

"Sick" humor or Affirmations – either can be good for the soul

August 15, 2007 by Rosalind Joffe 1 Comment

I love this posting, The top ten worst suggestions commonly given to someone with a chronic illness, on a very fun site, But You Don’t Look Sick. I’m so NOT “funny” (I wish I was though) — but I love when someone can make me laugh. But along the lines of different strokes for differentRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

The Best Careers in 2006

August 2, 2007 by Rosalind Joffe Leave a Comment

In today’s The Wall Street Journal Online – Career Journal there’s an article about the “Best Careers in 2006”. The WSJ researchers came up with 8 careers: Curriculum and instructional coordinators High-school special-education teachers Hospital and clinic managers Management consultants and analysts Medical researchers Physical therapists Sales, marketing and advertising managers Social workers, counselors andRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

Cold, hot and something in between.

July 31, 2007 by Rosalind Joffe 2 Comments

Yikes! I can easily forget what it’s like to be in places where you can’t control the air conditioning. I spend my days in an office — but my office is in my home. I only have to negotiate with my husband and daughters (and our daughters don’t live here very often any more). ForRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Oh, my but you DO look good.

July 30, 2007 by Rosalind Joffe 7 Comments

Do you get annoyed when someone tells you how good you look (and you feel like “crap”?) According to one survey (and I’m always skeptic regarding surveys and who/how they’re done), 50% of people with chronic illness say they don’t like to be told they look good. I’ve never felt that way — even whenRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Talking about it

Some things to think about with an ileostomy.

July 26, 2007 by Rosalind Joffe 2 Comments

The summer and humidity, in particular, is tough on us ileostomy folks. My flange (this thing that attaches to my skin) easily gets irritated. I went to a “wound nurse” (that’s what it’s called!) to see if there has been an improvement in the technology over the 10 years since I first got this andRead More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness, Talking about it

"Can we talk?" I live with an ileostomy

July 22, 2007 by Rosalind Joffe 1 Comment

This week, I had an epiphany. I don’t talk about living with an ileostomy. What made me realize this? My friend and colleague, Jenny Prokopy (Chronicbabe.com), is a freelance writer and was looking for people to interview for a piece that she’s working on for The Phoenix, the magazine of the United Ostomy Association ofRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Talking about it, Working with chronic illness

The CDC recognizes the "reality" of chronic fatigue syndrome

July 17, 2007 by Rosalind Joffe 1 Comment

Hooray. The Center for Disease Control (CDC) is releasing studies showing that chronic fatigue syndrome is a real disease and not just “yuppie flu”. They’re also sponsoring a $6m public awareness campaign about the illness. That’s a start in the right direction toward helping individuals with this disease feel less like they’re “psych cases” orRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Getting older all the time.

July 16, 2007 by Rosalind Joffe Leave a Comment

Summer …. and it finally feels like it in New England. This past weekend was my yearly reunion with childhood friends. We used to call it the White Plains High School Girls weekend – but since we include our spouses, the name doesn’t work anymore. 5 childhood friends (and two were high school sweethearts!) andRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

Do you think of yourself as someone who lives with a chronic illness?

July 11, 2007 by Rosalind Joffe 10 Comments

Recently, I was in a conversation in which we were talking about how you find information — particularly on the internet.   I asked if she uses such search words as chronic illness or multiple sclerosis (which is what she has).  She said,  “I don’t like to think of myself as having a chronic illness andRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Talking about it

Power in numbers

July 8, 2007 by Rosalind Joffe 7 Comments

There’s been good news about chronic fatigue syndrome lately. Scientists in Australia have identified 25 genes that are linked to CFS. In her blog, Laura talks about this news with the hopeful tone that we all get when we consider the possibility that someday there may be a cure (hey, even treatment options that areRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

How Doctors Think

July 5, 2007 by Rosalind Joffe 2 Comments

How do you make a book required reading for anyone who is a patient? (Oh, if only we could.) If you haven’t read How Doctors Think, by Dr. Jerome Groopman, go immediately to your local book store, library (or buy it online at his website.) I wish that I’d had this book when I wasRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness

No Greasy Poles, here, thank you.

July 1, 2007 by Rosalind Joffe 2 Comments

I’ve done it. I’ve carved a week for a vacation at our place in Gloucester, Massachusetts (home to 5 minutes of fame on YOU Tube for the St Peter’s Festival and the Greasy Pole). Nope, I didn’t see it but I did hear about it and all the locals love it because it brings inRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

All work and no play can keep a person: chronically sick

June 24, 2007 by Rosalind Joffe 5 Comments

This week I’m going to start living my New Year’s resolution. Ok – so I am 6 months late. My resolution? To create a better balance between work and play. Actually, I should have made it: to put play back into my life. Hey, I know it’s not easy to do this — I’ve beenRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Pain doesn't kill. Or does it?

June 18, 2007 by Rosalind Joffe 1 Comment

I didn’t get this written yesterday because the day was filled with Father’s Day. First with my own father (who unfortunately has trouble remembering anything other than, “it isn’t my birthday?”), then with my brother (who had “the best father’s day ever” and the father of my two daughters, my husband. The two of themRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

Acquiring Hope

June 14, 2007 by Rosalind Joffe 3 Comments

I’ve lived with the diagnosis of multiple sclerosis since 1980. After having had difficult symptoms for two years, the diagnosis was a big relief, particularly since Iwas told that MS was the best news out of the different diseases that the doctors were thinking about. I think that was the first moment in my lifeRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Headaches can be a real pain

June 6, 2007 by Rosalind Joffe 2 Comments

This spring, I’ve had miserable headaches from allergies. I’m noticing that it’s affecting my relationships. Just today, my dog, Iko, looked at me quite angrily when I cut our walk short because every footfall caused ratcheting pain. The pain gets so bad sometimes that only acupuncture (thank you my wellness medical team) gives relief. I’veRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Love medicine

May 31, 2007 by Rosalind Joffe Leave a Comment

A friend, Kelly Packowski (she and her husband have a foundation, The Kelly Packowski Foundation for MS, changing one life at a time), has had a tough spring with multiple sclerosis symptoms and she’s trying a new drug therapy that requires a surgical procedure to put a port-a-cath in her chest. I emailed her toRead More

Filed Under: Musings on LIfe with Chronic Illness

Chronic illness . . . it's an isolating experience

May 28, 2007 by Rosalind Joffe 4 Comments

I’ve been noticing how I no longer feel as “different”, now that I feel healthy so much of the time. I don’t think it’s just coincidence that I don’t feel as isolated when I’m not symptomatic. But this weekend, I was in my husband’s parents home and the air conditioning didn’t work well. Some roomsRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Allergies, coughs and sinus headaches. Can I complain?

May 15, 2007 by Rosalind Joffe 1 Comment

The other day, I found myself complaining about my sinus headache from allergies. When I stopped and noticed it, there were 2 things that struck me about this. ONE: I never had allergies until a few years ago and it’s become just one more health/illness thing to get used to. In fact, until a fewRead More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness

A mother's day

May 13, 2007 by Rosalind Joffe 1 Comment

This weekend I had the best mother’s day present I could imagine: dinner with my two daughters. My husband had something else to do, so it was just the girls and I having sushi, our favorite thing to do since they were each a pint size. If you’re a parent, you know what I meanRead More

Filed Under: Musings on LIfe with Chronic Illness

I can't find my balance today

May 10, 2007 by Rosalind Joffe 1 Comment

I was looking on Amazon for a book to send to a client when I did a search on the term balance and learned that there are 363,917 results! At the top of the list is The Great Balance and Stability Book. I’m not sure what it’s about but it sure is something we’re allRead More

Filed Under: Musings on LIfe with Chronic Illness

News flash: Neuropathy and bad balance with MS makes it hard to sit in the balcony

May 6, 2007 by Rosalind Joffe 3 Comments

The other night, my husband went to the Boston Lyric Opera’s production of the Marriage of Figaro. I was so excited that Jake wanted to go ( a “Deadhead” — he’s a recent convert to “serious music”, since listening to Robert Greenberg’s lecture series, How to Listen to and Understand Great Music). But, after weRead More

Filed Under: Musings on LIfe with Chronic Illness

Multiple sclerosis simulator – machines built for empathy

May 4, 2007 by Rosalind Joffe 3 Comments

Huh? A machine that can help people feel MS symptoms? Will wonders never cease? Apparently, Biogen Idec (maker of Avonex, the MS drug I take) has created a simulator of the MS experience. The article in The Boston Globe said that the pharmaceutical is trying to convince neurologists that their patients need drug therapy byRead More

Filed Under: Musings on LIfe with Chronic Illness

"Focusing" on chronic pain

April 29, 2007 by Rosalind Joffe Leave a Comment

Those who know me and/or work with me know that in the past year I have become completely enamored with the power of focusing. Not just the book, for sure, but the practice itself.  I believe that this technique has tremendous potential for those of us who live with chronic health challenges.  Last week, AnnRead More

Filed Under: Musings on LIfe with Chronic Illness

Chronic illness is a work & family issue

April 26, 2007 by Rosalind Joffe 5 Comments

This morning, I went to a meeting of the Association for Career Professionals – Boston to hear the executive director, Brad Harrington, of Boston College Carroll School of Management, Center for Work & Family, talk about the Protean Career. Huh? Well for those not up to date on career theory, this is a model thatRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Crohn's Disease symptoms threw me off track for 13 years

April 24, 2007 by Rosalind Joffe 3 Comments

Last week I was talking to one of the most trusted members of my personal support team, Janet. I think of her as my spiritual coach; it’s a generic term for the role she’s played on my road to health and healing. She’s intuitive, she’s tuned in, she’s wise and also very down to earth.Read More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

It sure ain't easy (making decisions)

April 22, 2007 by Rosalind Joffe 4 Comments

I’m writing a book with Joan, Keep Working Girlfriend: Women, Work & Chronic Illness (yup the title of the blog). From the first written words, I’ve been engaged in this internal debate about whether to peddle it to a publisher or to “self publish”. I won’t bore you with the details — let me justRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

There's no such thing as safe (just ask someone living with chronic illness).

April 19, 2007 by Rosalind Joffe Leave a Comment

Everyone is commenting on the Virginia Tech shootings (in the media and the blogs) and I haven’t had anything new to say. Until today, when the woman who cuts my hair, G., referred to the news, saying, “How horrible. You send your kid to school and you think he/she will be safe. Only to findRead More

Filed Under: Musings on LIfe with Chronic Illness

Chronic illness – do you know how much is too much?

April 16, 2007 by Rosalind Joffe 2 Comments

All of my life, I was a morning person. I didn’t pull “all-nighters” in college –I was probably the only one on campus getting out of bed at 6:00am.  But one result of living with chronic illness all these years is that I need a lot of sleep.  Yet, when I couldn’t drag myself outRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

The little train that could

April 13, 2007 by Rosalind Joffe 4 Comments

Okay. I could do this. A trip to visit my daughters in NYC for less than 24 hours. I’m finally healthy these days and there’s a good reason to go and no good reason not to go. But, for most of their lives, I was the mom who didn’t attend events unless I had toRead More

Filed Under: Musings on LIfe with Chronic Illness

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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2026 Rosalind Joffe, ciCoach | Photograph by Meri Bond