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Sometimes it's not really about when you disclose your chronic illness.

May 7, 2008 by Rosalind Joffe 4 Comments

How do you know when it’s time to tell your boss about your chronic illness?

I got this question in my email today (I added the bold):

“At what point, if ever, do I need to tell my employer I have a chronic illness? In the past, I’ve always gone with the philosophy of not mentioning it until something happens and it causes me to need to take a week off to rest, or I get an episode of double vision and can’t drive or read my computer monitor. At my current position, I was here 4 years before anything came up. I always figured that if I proved myself to my employer first, by being reliable, smart, and doing good work, they’d cut me some slack when I needed time off or some kind of accommodation. Is this a good approach or not? Is there something better?”

Obviously she feels uncomfortable — but I’m not sure she’s identified what’s really bugging her. And that’s a problem because when you don’t know what’s wrong, you come to conclusions that don’t solve the real problem. Here are some questions I have:

1. Do you think that this illness hurts your performance?

2. Do you think that telling your employer earlier (before an episode) would make a difference in your ability to get your work done?

3. You say they haven’t “cut you slack”. Do you think that’s the nature of this organization or is it something that you might be doing?

I didn’t give advice. I don’t know enough about her to do that. Anyway, there are specific and concrete suggestions for how, why and when to disclose at work in my Career Thrive Guidebook, Are You Talking?

Too often, we don’t know what’s really bugging us – and we make decisions that don’t solve the real problem. I have a hunch that’s true for the person who emailed me.

You can give yourself the challenge to find out what needs to be different for you to work successfully living with a chronic illness. Read about how I work with people, a lot like you, on my website . And then contact me so we can talk about how my coaching programs can help you stay working in the best way that you can.

Rosalind


Filed Under: Talking about it, Working for others, Working with chronic illness

Use a Career Highlighter

May 5, 2008 by Rosalind Joffe Leave a Comment

Chronic illness or not, being able to network and write compelling resumes are keys to landing jobs. But do they always go hand in hand? My daughter is 23 and has been working as an ESL teacher through Teach for America (TFA). Calling me at 7:00 am this morning (as she often does on herRead More

Filed Under: Career Development, Job hunting, Working for others

Dropping the ball and chain

April 29, 2008 by Rosalind Joffe 2 Comments

If I had a dime for every time someone said to me,”I’d like to be self employed”, I’d be rich (well maybe my pockets would jingle). You don’t have to have a chronic illness to dream about self employment. But I can tell you from personal experience, it was a huge motivator for me. IfRead More

Filed Under: Starting a business, Working for others, Working with chronic illness

Conserve your energy — Making it sexy to be "Green"

April 24, 2008 by Rosalind Joffe Leave a Comment

How hard is it for you to regulate your own environment? How well do manage your resources? Forget it – you can’t look to the United States government or most of the developing countries of the world for a role model – they stink at it. Why? My theory is because it’s just not sexy.Read More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

It's a chronic illness (stupid). Are YOU clear?

April 17, 2008 by Rosalind Joffe Leave a Comment

In the past few weeks, I’ve “traveled” out of town twice: a short business trip and a longer vacation. And again I was reminded of my disabilities and their affect on what I do and how I do it. The take away message? Gotta’ be clear with myself about what I can and can’t doRead More

Filed Under: Musings on LIfe with Chronic Illness, Talking about it, Working for others, Working with chronic illness

Are You Wondering About that Next Job?

April 15, 2008 by Rosalind Joffe 2 Comments

Several emails asked me to post a picture from my trip to Argentina. This was Iguazu Falls. Impressed that a sign indicated wheelchair accessibility — but disappointed no rating for “people with bad balance that gets worse in intense heat!” But we know that chronic illness symptoms are difficult to rate, don’t we? Which leadsRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Working at home can leave you risk averse (when you have disabilities)

March 30, 2008 by Rosalind Joffe 1 Comment

For the first 20 years of my career life, I worked for others, outside my home and loved it. No matter how sick I felt, getting dressed for work, walking into my office and seeing my co workers, distracted me and cheered me. Now I spend my days alone – talking with clients or myRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Do you feel driven to self employment?

March 26, 2008 by Rosalind Joffe Leave a Comment

Do you think about being self employed but are worried about the health insurance? A reporter recently asked me if that’s a stumbling block for people with chronic illness. You can read more about health insurance for the chronically ill in the Small Business Column, The New York Times, Finding Health Insurance if You’re SelfRead More

Filed Under: Attitude, Career Development, Starting a business, Working for others, Working with chronic illness

Nuggets for you to use to plan and build your career

March 19, 2008 by Rosalind Joffe Leave a Comment

I discovered 2 gold nuggets today that you can use to plan and build your career: This is from the career blog, Dilbert: “If you want an average successful life, it doesn’t take much planning. Just stay out of trouble, go to school, and apply for jobs you might like. But if you want somethingRead More

Filed Under: Career Development, Starting a business, Working for others, Working with chronic illness

Will a legally blind governor make a difference for the disabled?

March 17, 2008 by Rosalind Joffe 2 Comments

I have a client who is legally blind. He lives with a progressive disease and he lives with the fear that some day, he may be completely blind. He’s wondering if he should try to keep working or take an early retirement that his office has offered? David Patterson , the new governor of NewRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

You gotta' share your questions about working with chronic illness

March 12, 2008 by Rosalind Joffe 7 Comments

It’s a gray,  bad weather day here in MA.  And, it’s another day of bleak news. The long running drama of presidential campaign has morphed into a match of who can outlast them all –  an  insane war we can’t “win” drags on, more suicide bombers are killing too many people all over the world, Read More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Chronic illness and work success- a big dose of motivation is required.

March 8, 2008 by Rosalind Joffe Leave a Comment

(Before I get to today’s topic), I’ve been asked to offer an alternative to the multiple posts/week blog. So, for those who just want to hear from me once/month (drum rolls, please….) Introducing our monthly newsletter, Words of Wisdom: The Chronic Illness at Work newsletter. And, to give you even more value, when you subscribeRead More

Filed Under: Attitude, Career Development, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

When it's time to take charge of your body and your schedule

March 6, 2008 by Rosalind Joffe 3 Comments

What do you do when you see “it” coming: Continue to push too hard and you could bring on an “attack” or a “flare” — but your team or client is relying on you to keep going?  Ring any bells? My client, P, lives with some devastating diseases, including hypothyroidism, Addison’s disease, and neurally mediatedRead More

Filed Under: Attitude, Health Info, Talking about it, Working for others, Working with chronic illness

Can you see yourself through your supervisor's eyes?

March 3, 2008 by Rosalind Joffe Leave a Comment

When I’m coaching clients about workplace situations, particularly difficult situations with a boss or co worker,  they’ll inevitably say,  “I wish we knew what Ted (or Sally, Jim or Sue) really thinks  about this.”  Do you wish you could see your situation from the other person’s point of view? And get some ideas of howRead More

Filed Under: Working for others, Working with chronic illness

Do you wonder if you should disclose?

February 27, 2008 by Rosalind Joffe Leave a Comment

Figuring out whether to talk about your chronic illness to your boss seems to be the top issue that people wonder about. At least that’s what most journalists think. I’ve found that every time I am interviewed, inevitably one of the first questions I’m asked is : Should a person disclose? This past weekend, in Read More

Filed Under: Talking about it, Working for others, Working with chronic illness

I can not work if I'm pain

February 25, 2008 by Rosalind Joffe 4 Comments

“I can’t work when I’m in pain.” My client’s (we’ll call him X) words stopped me in my tracks. He meant what he said. But the problem is that he lives with pain about 75% of his waking hours. X has neurogenic pain and neither medication nor alternative therapies are helping. So how will heRead More

Filed Under: Attitude, Working for others, Working with chronic illness

Do you wake in the middle of the night wondering what will happen if you don't make a career change?

February 18, 2008 by Rosalind Joffe 2 Comments

Career change is a hot topic. It’s the number one issue for most of my coaching clients . But they’re not thinking about this because they’re bored or don’t like their jobs. It’s because they CAN’T do their jobs as expected. Diagnosed at 29 years old with multiple sclerosis (temporarily blind in one eye andRead More

Filed Under: Career Development, Starting a business, Working for others, Working with chronic illness

Changing diapers, changing habits and changing careers

February 13, 2008 by Rosalind Joffe Leave a Comment

Most of my clients need to make big changes in their work lives – given their illness challenges. This can mean finding a new job, developing a new career – or just changing long standing habits that are getting in your way now. When you think about a change like this, do you find yourRead More

Filed Under: Attitude, Career Development, Musings on LIfe with Chronic Illness, Starting a business, Working for others, Working with chronic illness

Do you dare to have a career?

February 6, 2008 by Rosalind Joffe 3 Comments

Can you have a “career” if you live with chronic illness? The truth is that illness often leads to some kind of job change. Not that it’s the first thing people think about when they get a diagnosis. But from my work coaching people with chronic illness around their career – it’s more common thanRead More

Filed Under: Attitude, Starting a business, Working for others, Working with chronic illness

Chronic illness can make unemployment look appetizing

January 31, 2008 by Rosalind Joffe 5 Comments

But don’t be fooled. It’s not as sweet as it looks. Do you day dream about quitting your jobso you’re not always torn in 10 directions from the pressures of personal commitments, work demands and a sick body? Are you always behind — feeling you’ve never done enough — because of this chronic illness? DoRead More

Filed Under: Attitude, Health Info, Working for others, Working with chronic illness

Why isn't Career Coaching for employees with chronic illness part of wellness programs?

January 30, 2008 by Rosalind Joffe 1 Comment

  Speaking of the value of wellness coaching and health coaching (both hot topics these days – have you noticed????),  why not career coaching for people with chronic illness?  Read this post, Curing Healthcare,  Workplace Wellness Programs: Motivating Employees to Live Healthy,  — it’s got interesting statistics showing that these programs actually improve the bottom line! Read More

Filed Under: Working for others, Working with chronic illness

Getting down and getting serious about serious health conditions

January 28, 2008 by Rosalind Joffe 13 Comments

I wish I had a dollar bill (remember when it was a nickle?) for every time I get asked about FMLA (the Family Medical Leave Act). People with chronic illness  turn to this “benefit” when  illness rears it’s ugly head. And, it can be a good option depending on some variables (such as the sizeRead More

Filed Under: Health Info, Working for others, Working with chronic illness

What does accepting chronic illness mean to you

January 27, 2008 by Rosalind Joffe 4 Comments

At the  Kelly Packowski Foundation for MS,  Kelly described how her conversations with  grant recipients helped her to realize that she hasn’t accepted that she has this illness.  I talk about this a lot with clients — and other people who contact me —  so I was really intrigued by this.    She said that she still behavesRead More

Filed Under: Attitude, Working for others, Working with chronic illness

Getting down with what gets in your way

January 16, 2008 by Rosalind Joffe Leave a Comment

It’s that time of year again (a new year) and I find myself thinking about what has to get done … and what happens along the way.   From the first conversation that I have with a prospective client, we’re talking about goals, desired outcomes, unfulfilled promise.  And it generally boils down to the same thing:Read More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

What do you say to your boss with a new colitis (or any chronic illness) diagnosis

January 9, 2008 by Rosalind Joffe Leave a Comment

My good friend’s “baby”, Jimmy, got a diagnosis today of ulcerative colitis.   Jimmy has always been a strong guy — and he’s lost 15 pounds in the past month!  He told his mother that for the first time in his life, he felt like he was drowning. The “good news” is that he’s being treatedRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Looking forward to a rosy job market for chronic illnesser's

January 3, 2008 by Rosalind Joffe Leave a Comment

Forbes magazine columnist, Tara Weiss, predicts that “…job seekers will be in their glory in 2008.” You read it here. Here’s my prediction: a good job market for “regular citizens” is great news for “employees with chronic illness” (estimates range between 1 in 4 and 1 in 2!). Weiss says that companies are more likelyRead More

Filed Under: Career Development, Job hunting, Working for others, Working with chronic illness

New Year Thoughts

December 31, 2007 by Rosalind Joffe Leave a Comment

Working with chronic illness. Who is driving your bus? Do you feel like you’re driving in circles – or someone else is driving this instead of you? I want to hear your thoughts – we all want your comments. Click on the comments on share with others what you find works. Here are my thoughtsRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Can you fit the pieces to get your Career Thrive going — with a chronic illness?

December 26, 2007 by Rosalind Joffe Leave a Comment

I just got an email from someone who saw my blogs.  She wants me to know that she doesn’t understand why I feel “compelled to write about working with a chronic illness.”  Oh, and FYI — she’s recently gotten a diagnosis of Rheumatoid Arthritis but she doesn’t see that it should be a problem toRead More

Filed Under: Attitude, Working for others, Working with chronic illness

Do you take vacation if you're WORKING (with chronic illness)?

December 23, 2007 by Rosalind Joffe 1 Comment

A client just emailed me saying that he decided not to take this week off as he’d planned  —  he’s going to keep working since he’s feeling well  (he’s got hypertropic cardiomyopathy). He’s a software marketing executive  and he figures he might as well take advantage of it. I found myself thinking, I guess that’sRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Do your friends at work make work a less stressful experience for you?

December 5, 2007 by Rosalind Joffe 2 Comments

Great thing about reading other blogs is that I find articles I wouldn’t have seen otherwise. A favorite blogger of mine, Kerri Morrone, at Six Until Me (click on this link) mentioned this article by Tara Parker Pope at the New York Times Blog, The Value of a friend in the next cubicle. The pointRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Hooray for Pearl Jam's Mike McCready who shares what it's like to be on the road with crohn's

November 29, 2007 by Rosalind Joffe Leave a Comment

Mike McCready, Pearl Jam guitarist, talks about (click here to see and read the slide show on Health Talk’s site) crohn’s disease and the crunch of getting “slammed” while he’s in concert. If you live with UC or Crohn’s you know what he’s talking about (ok, maybe you’re not opening for the Stones). When IRead More

Filed Under: Working for others, Working with chronic illness

Holidays include office parties that you don't want to go to

November 26, 2007 by Rosalind Joffe 3 Comments

Thanksgiving is over and we’re entering the serious party season! I’m talking to clients who are feeling an all too familiar weariness – especially at work – that crops up this time of year. I know. Who wouldn’t feel this way when you’re “fighting” daily chronic pain, fatigue — or a body that isn’t workingRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Chronic illness – how much do you disclose?

November 17, 2007 by Rosalind Joffe 2 Comments

A reader emailed because she’s trying to figure out if and how to tell co-workers about her new chronic disease diagnosis. She wondered if I still offer “Free consultations”. (By the way, check out my newly designed website — with new resources!) I don’t because it doesn’t offer enough value and since I can’t reallyRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Technology snafus, chronic illness snafus. Are you ready to pull out your hair?

November 7, 2007 by Rosalind Joffe 2 Comments

My apologies for those who received the last few posts in gobbledeygook.  That wasn’t my intention (if you didn’t read the last post about intention, you should!) But as we know, even with the “right” intentions, things can still mess us up. Technology does it. And so does chronic illness. Have you found that whenRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Daddy days? How about chronic illness days?

October 28, 2007 by Rosalind Joffe 5 Comments

If Dad’s can make schedule adjustments without it hurting career, can people with chronic illness? YES — I work with people so they can do this — and they can. But it’s not easy. Matt Hutter and family Last week, Wall Street Journal Columnist, Sue Shellenbarger wrote, Taking a Career Timeout to allow for DaddyRead More

Filed Under: Working for others, Working with chronic illness

Can people with chronic illness be productive workers? YES!

October 19, 2007 by Rosalind Joffe 6 Comments

I’ve written about needing an oar to keep swimming. I offer those oars to people when I can — as a career coach focusing on people with chronic illness. And, I gotta’ tell you that at least once a day, I talk to someone who is drowning just trying to get to work, never mindRead More

Filed Under: Career Development, Health Info, Working for others, Working with chronic illness

Who is managing your health, anyway?

October 3, 2007 by Rosalind Joffe 8 Comments

I spend a lot of my day talking with people who are either employed or are looking to be employed again, quickly. As a coach, my job is to ask good questions and be sympathetic.  But, if I hear one more person tell me that she has to keep her job (or take a job)Read More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Chronic illness — talking about it does help

September 13, 2007 by Rosalind Joffe 7 Comments

What you say is just as important as what you don’t say. And, it’s even more important when you want to be successful in your work and you live with invisible AND chronic illness. Communication is king. I have a hunch that not many people would disagree me with me about this. But, I wishRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Recommendations to Social Security Administration

September 5, 2007 by Rosalind Joffe Leave a Comment

Last summer, I was honored (and a little intimidated by my colleagues) to participate in a process to advise the Social Security Administration on ssdi and ssi benefits. Hold your applause. They’re not giving away more money (did you know that SSA gives out 120 billion dollars in benefits) — just trying to make theRead More

Filed Under: Health Info, Working for others, Working with chronic illness, Young with Health Problems

September – Did you know that it's invisible chronic illness month

August 28, 2007 by Rosalind Joffe Leave a Comment

Lots of stuff going on in the next month for those of us living with invisible chronic illness, thanks to the work of rest ministries.org. What makes this great? Well, in today’s world of rapid fire information and the power of the internet, this information sharing can only help those of us who want toRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Disease Management: A place for career coaching

August 14, 2007 by Rosalind Joffe 1 Comment

Recently, a new industry has emerged that many people are unaware even exists. It’s called disease management and it’s another effort at health care cost containment. These programs are funded by employers (and or their insurance companies) with the intention of reducing the high costs incurred by a small percentage of people. According to TheRead More

Filed Under: Working for others, Working with chronic illness

Weight – Is too much a chronic illness?

August 6, 2007 by Rosalind Joffe Leave a Comment

Should being fat be considered a protected category? Should it be considered a chronic illness? An article in last weekend’s Boston Globe Magazine, Do We Really Need a Law to Protect Fat Workers?, talked about a bill that is being considered by the MA state legislature to protect obese people from discrimination. “… it’s hardRead More

Filed Under: Attitude, Working for others, Working with chronic illness

I'm miserable at work because of chronic illness. Or am I?

June 4, 2007 by Rosalind Joffe 2 Comments

If you’re feeling badly about your job — too much to do, not interesting enough stuff to do or you dislike what you do — it’s easy to blame this on living with chronic illness. Do you find yourself thinking, “If only I wasn’t sick, things would be different”. It’s easy to forget that thisRead More

Filed Under: Working for others, Working with chronic illness

Chronic illness is a work & family issue

April 26, 2007 by Rosalind Joffe 5 Comments

This morning, I went to a meeting of the Association for Career Professionals – Boston to hear the executive director, Brad Harrington, of Boston College Carroll School of Management, Center for Work & Family, talk about the Protean Career. Huh? Well for those not up to date on career theory, this is a model thatRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Keeping your job – an exercise in leadership

February 17, 2007 by Rosalind Joffe 2 Comments

I’ve been thinking a bit about what it takes to regain some control over your life and your future when you’ve been derailed by your body. Truthfully, it’s the same with any unexpected circumstance that suddenly changes everything. But we’re all here because our bodies have presented us with some life-altering challenges. I’ve lost twoRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Real people, real "working"

December 25, 2006 by Rosalind Joffe Leave a Comment

Hi Rosalind, After my call with you, I was so motivated to make my job demands up front without explanation (telecommuting as needed, 1 day off, etc.). The president and hiring manager seemed confused by it, but didn’t ask too many questions and I happily accepted their job offer. Just hours after the phone call,Read More

Filed Under: Talking about it, Working for others, Working with chronic illness

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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2025 Rosalind Joffe, ciCoach | Photograph by Meri Bond