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Gone are the days – life in remission

April 2, 2007 by Rosalind Joffe 1 Comment

Gone are the days when I had to run to a bathroom when out shopping at Home Depot with my husband – or anywhere else. Gone are the days when I couldn’t commit to anything before 9 am – but I still prefer not to. Gone are the days of working from bed instead of my desk – unless I want to. Gone are the days when vacations are cut short because I just couldn’t walk around without pain, or the need for a bathroom.

It’s been almost 2 years since I’ve had any symptoms associated with my illness, Crohn’s Disease. As a matter of fact, I’m probably healthier than I was even before the onset of my symptoms in 1992. I realized that I was in remission on vacation with my husband in Boston in 2005 – even before my doctor gave me the official word a few months later – when we were walking the freedom trail and I had all the strength of a “normal” person. It’s a delightful state to be in, and a funny one too.

I can conjure up memories of those days and weeks and months when I was weak and in pain, but they do occur as memories from the past. I like that, I celebrate it, and sometimes feel weird about it. The conventional wisdom says remission isn’t permanent. I don’t know. I feel it’s possible that I’ve found equilibrium between my body and my environment.

I continue to pay attention to things that start to put me out of balance in my body. I take the prescribed medicines and guard my schedule enough to make sure that I get the rest I need, and I’ll still slow down if I push things to far. I continue to see the healing professionals who have positively helped me in this journey, and I think this helps. I’m even crazy enough to think that I could stay in remission for the remainder of my life. Why not? And if not, so be it.
Joan

Filed Under: Health Info, Musings on LIfe with Chronic Illness

Our Dogs: Making it "normal" (when you're a family with chronic illness)

March 26, 2007 by Rosalind Joffe 3 Comments

Fifteen years ago, we brought home a small white Puppy with one ear that didn’t stand up straight. Ace was a West Highland Terrier and he was the alpha of the pack. Our daughters were 4 & 7 and after living with multiple sclerosis for years, I’d developed ulcerative colitis that left me with highRead More

Filed Under: Musings on LIfe with Chronic Illness

Living with our diagnosis – Louise's story

March 23, 2007 by Rosalind Joffe 1 Comment

Louise, who was diagnosed with Rheumatoid Arthritis at age 21, shared her journey with me. Her first doctor tended to minimize her suffering, telling her it wasn’t so bad. She thought he was nuts but didn’t speak up for herself. When her chiropractor referred her to an allergist a couple of years later she wasRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Living with chronic illness – top ten positives

March 20, 2007 by Rosalind Joffe Leave a Comment

This post has been submitted by a colleague, Nicole Matoushek. Thanks, Nicole, for offering your perspective! As ridiculous as this sounds, in David Letterman fashion, I have created my own top ten list of the positives of the chronic illness experience. 10) Your pharmacist knows you by name. 9) Otherwise complete strangers are your instantRead More

Filed Under: Musings on LIfe with Chronic Illness, Talking about it

Chronic fatigue isn't "life threatening" but it can threaten how we live our lives.

March 12, 2007 by Rosalind Joffe 4 Comments

In her comment to the post, Gone for treatment back by 2:00, Nancy wrote that it is helpful to remember that chronic fatigue won’t kill us. My physical therapist put it another way, saying, “It’s just pain – that’s all”. I knew that she wasn’t minimizing it, just trying to help me from worrying aboutRead More

Filed Under: Musings on LIfe with Chronic Illness

Are we too sick to dream?

March 10, 2007 by Rosalind Joffe Leave a Comment

I was sent links to a couple of video marketing movies (I think that’s what they’re called.) They both got my attention but one caused me to think about the readers of this blog, and those not yet here. The movie was about dreaming and it asked many questions. Are we too young, too old,Read More

Filed Under: Musings on LIfe with Chronic Illness

And the winner is …

February 26, 2007 by Rosalind Joffe 3 Comments

O.K., I’m a bah humbug. I’m not a fan of the Academy Awards. I gotta’ admit, though, I do like looking at the gowns – but that’s about it. It seems to me that its’ much ado about not much. Don’t get me wrong. There’s nothing I’d rather do than watch a movie. I usedRead More

Filed Under: Musings on LIfe with Chronic Illness

Keeping your job – an exercise in leadership

February 17, 2007 by Rosalind Joffe 2 Comments

I’ve been thinking a bit about what it takes to regain some control over your life and your future when you’ve been derailed by your body. Truthfully, it’s the same with any unexpected circumstance that suddenly changes everything. But we’re all here because our bodies have presented us with some life-altering challenges. I’ve lost twoRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Repeat after me: I am not this illness

February 5, 2007 by Rosalind Joffe 2 Comments

I’d been drinking white tea (which is like green tea but “softer) all afternoon in an effort to keep my mind alert and my body less chilled.  It was 4:00pm and I was weary and cold. I found myself wondering:  What’s causing this? Is it the weather – 12 degrees with a wind chill that’sRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Searching to be believed

January 29, 2007 by Rosalind Joffe 2 Comments

Twenty six years ago. First there were multiple urinary infections. Then numbness that slowly spread from my left elbow to my thumb. I visited numerous doctors who administered many tests. Nothing showed up and there was nothing they could do for me, they told me. I visited many alternative health care practitioners and spent lotsRead More

Filed Under: Musings on LIfe with Chronic Illness

Searching for a diagnosis

January 23, 2007 by Rosalind Joffe 2 Comments

Twenty six years ago. First repeated urinary infections. Then numbness from my left elbow to my thumb. I visited numerous doctors who administered multiple tests. But nothing showed up and there was nothing they could do for me, they told me. I visited many alternative health care practitioners and spent lots of time and moneyRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness

I'm so tired I can't sleep

January 19, 2007 by Rosalind Joffe 5 Comments

This week has been a difficult one. The January renewal energy, acceleration in my level of activity and some discomfort associated with a recent medical procedure are in conflict! I want to sleep but I can’t get completely comfortable for the entire night. I want to be productive, but I’m tired. So I get upRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Illness changes the rules

January 10, 2007 by Rosalind Joffe 1 Comment

Without a doubt, chronic illness changes your view of your world and your life. It quite literally changes your physical capabilities – at least for the short term – and most likely your perception of yourself. Depending on your orientation to the world before the onset of your symptoms – as one reader recently commentedRead More

Filed Under: Musings on LIfe with Chronic Illness

Illness — so it doesn't become who we are.

January 8, 2007 by Rosalind Joffe 2 Comments

My husband, children and I are lucky that all of the grandparents, in their 80’s, are still alive. My parents have had severe chronic illnesses for the past 10 years, have witnessed the incessant loss of contemporaries, family and friends, and are now confronting their inability to take care of themselves. It’s painful and sadRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Are you hiding behind your illness?

January 4, 2007 by Rosalind Joffe 5 Comments

Today I’m feeling a little righteous. As a women who stayed engaged and in the workforce through the ups and downs of a chronic illness for over 14 years, and juggling everything else that comes with living life – including raising a child – I’m appalled to learn that my husband’s ex-wife is using herRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Honoring your needs – the holidays and beyond

December 27, 2006 by Rosalind Joffe Leave a Comment

The holidays are stressful enough for people in good health. They’re naturally accompanied my additional challenges when you’re not feeling well. Though I’m in remission and enjoying robust health these days I can remember days when I’d attend our family gatherings but have to lie very low in order to survive. I always felt aRead More

Filed Under: Musings on LIfe with Chronic Illness

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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2026 Rosalind Joffe, ciCoach | Photograph by Meri Bond