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What do you do if you're told that working will make you sick?

December 12, 2007 by Rosalind Joffe 3 Comments

I was blind in one eye and couldn’t lift myself to get out of bed. My neurologist told me that once I had my strength and my vision back, I should go back to work. That was 30 years ago and I’ve followed his advice ever since.

But this is clearly not the message everyone gets. I just got off the phone with a very nice woman who lives outside of Minneapolis. She’d read the article about my work in msnbc.com and she wanted to know what I could do for her – could I could help her work again?

She’d stopped working 7 years ago (not for health reasons) and since then she’s developed severe chronic severe asthma. Now, her situation has changed and she wants to work again – – but her doctor told her {essentially} that she’s nuts. He said that she’ll be sick all the time – catching every cold and virus.

She said she went onto web threads and people with chronic asthma reported that this is true – they’re sick all the time. My heart wanted to tell her to ignore her doctor and these people and go back to work, not to be afraid. My head knew that wouldn’t be helpful to her.

A quick web search led me to some research on this issue. Yup, it looks as if asthma and work can be connected. But does that mean all work — and for everyone? Apparently not.
I don’t think I’m a Pollyanna or naive when I say that this woman has the rest of her life to live and I think that telling her not to work is the wrong message. Come on – will working make her so sick that she shouldn’t do it?

What do you think? Anyone out there have a similar experience?

Rosalind

Filed Under: Attitude, Health Info, Working with chronic illness

Headache and Chronic Migraine Disease Blog Carnival

December 10, 2007 by Rosalind Joffe 2 Comments

In the “never a dull moment in the blogging world” department -in my  2nd post of today I’m here to tell  you about this event. This from the initiator of the carnival, Somebody heal me: The holiday season can be a fun time of year filled with high expectations, special events, family and friends andRead More

Filed Under: Health Info

I'm Tagged on a Meme.

December 10, 2007 by Rosalind Joffe 7 Comments

I’ve been “tagged”. I was wondering if I’d ever get to be tagged. And then, tah dah, How to cope with pain tagged me. If you’re not a blogger, you must be thinking – HUH? What’s a meme? Bloggers have this funny language. Basically this is like those chain letters we passed around as kidsRead More

Filed Under: Musings on LIfe with Chronic Illness

who pays attention to your health care?

December 7, 2007 by Rosalind Joffe Leave a Comment

Q: What’s wrong with this picture? A: Jews (or at least observant Jews) don’t eat Ham! But even well meaning people can make mistakes, don’t they? I thought of this when a client emailed me about an article about medical mistakes in The New Yorker (click here to read how checklists save lives) She wrote:Read More

Filed Under: Health Info

Do your friends at work make work a less stressful experience for you?

December 5, 2007 by Rosalind Joffe 2 Comments

Great thing about reading other blogs is that I find articles I wouldn’t have seen otherwise. A favorite blogger of mine, Kerri Morrone, at Six Until Me (click on this link) mentioned this article by Tara Parker Pope at the New York Times Blog, The Value of a friend in the next cubicle. The pointRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

So how is a computer crash like a body crash?

December 3, 2007 by Rosalind Joffe 1 Comment

The fact is that most people nod knowingly when you tell them your computer isn’t working –  and they’re quick to share their computer horror stories. But when your body crashes from a chronic illness flare? You get that blank stare –HUH? My client, “Janet”, just spent 10 days in the nether world of “downed”Read More

Filed Under: Musings on LIfe with Chronic Illness, Talking about it, Working with chronic illness

Are you Thankful about something or anything?

November 30, 2007 by Rosalind Joffe 1 Comment

Calls to all you chronic painers and chronically illnessers out there to check on this month’s blog carnival on How to cope with pain blog. There are some terrific bloggers writing in this, with links to this topic and you’re sure to get some inspiration, ideas — and at least a few more distractions inRead More

Filed Under: Musings on LIfe with Chronic Illness

Hooray for Pearl Jam's Mike McCready who shares what it's like to be on the road with crohn's

November 29, 2007 by Rosalind Joffe Leave a Comment

Mike McCready, Pearl Jam guitarist, talks about (click here to see and read the slide show on Health Talk’s site) crohn’s disease and the crunch of getting “slammed” while he’s in concert. If you live with UC or Crohn’s you know what he’s talking about (ok, maybe you’re not opening for the Stones). When IRead More

Filed Under: Working for others, Working with chronic illness

Chronic illness – We've Got Press

November 27, 2007 by Rosalind Joffe 2 Comments

Okay, it’s not Peace in the Middle East — and I know it’s not sexy- – but chronic illness can make headlines. Check out  Eve Tahmincioglu’s article in msnbc.com, Working Through a Chronic Illness   and then, Channeling Your Energy.  These are new articles that focus on the ISSUES (!). Media attention is the firstRead More

Filed Under: Working with chronic illness

Holidays include office parties that you don't want to go to

November 26, 2007 by Rosalind Joffe 3 Comments

Thanksgiving is over and we’re entering the serious party season! I’m talking to clients who are feeling an all too familiar weariness – especially at work – that crops up this time of year. I know. Who wouldn’t feel this way when you’re “fighting” daily chronic pain, fatigue — or a body that isn’t workingRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Changing workforce includes chronic illness

November 24, 2007 by Rosalind Joffe Leave a Comment

A client told me that PBS recently aired a show on the changing workforce and increasing flexibility that comes with it. Hooray! Those living with chronic illness (1 in 2 Americans) are part of the changing face of the workforce. She wrote, “Unfortunately there was no page or site for the program, and it’s notRead More

Filed Under: Working with chronic illness

Still cooking with chronic illness

November 21, 2007 by Rosalind Joffe 9 Comments

Thanksgiving — and it’s my turn to host. The “immediate family” is up to 18. Three generations — and the next generation has started to multiply. So, here’s the thing. I’ve lived with multiple sclerosis for 28 years – since I was 28 — and it’s always been hard to stand on my feet forRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Is cancer (or other chronic illness) the reason you're not working?

November 20, 2007 by Rosalind Joffe 3 Comments

The journal Archives of Otolaryngology reported a study that followed patients with carcinomas (cancer) of the head and neck to find out if they stopped working. Here are the highlights: 239 patients were employed at time of diagnosis and 38.1% discontinued work. Of those who left work, the top 5 reasons were: Fatigue (58%), speechRead More

Filed Under: Attitude, Talking about it, Working with chronic illness

Do you want to hear, "Happy Thanksgiving"?

November 19, 2007 by Rosalind Joffe 8 Comments

I’d take a guess that if you’re reading this, you live with some chronic issue – pain, fatigue, limbs or brain that doesn’t work right. Have you noticed how often people leave a conversation with, “Happy Thanksgiving”? Probably more times than you can count. I know I find myself doing it. Then, a client toldRead More

Filed Under: Talking about it, Working with chronic illness

Chronic illness – how much do you disclose?

November 17, 2007 by Rosalind Joffe 2 Comments

A reader emailed because she’s trying to figure out if and how to tell co-workers about her new chronic disease diagnosis. She wondered if I still offer “Free consultations”. (By the way, check out my newly designed website — with new resources!) I don’t because it doesn’t offer enough value and since I can’t reallyRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Chronic illness demands you take action.

November 14, 2007 by Rosalind Joffe 1 Comment

Today is Diabetes World day.  I don’t have Diabetes among my illnesses but I do know that chronic illness can leave you feeling powerless.  I wrote in my last post about how easy it is to feel you have no voice — and how bad it is for you.   So, if you have Diabetes,Read More

Filed Under: Health Info, Working with chronic illness

Does your doctor run late?

November 11, 2007 by Rosalind Joffe 3 Comments

This past Friday I missed an appointment with a client because I spent two hours waiting to see a hand surgeon about an infection in my thumb. By the time I saw him, the tears were welling in my eyes.  Nope –I don’t cry when I’m angry.  This experience brought back the memories full forceRead More

Filed Under: Health Info, Talking about it

Technology snafus, chronic illness snafus. Are you ready to pull out your hair?

November 7, 2007 by Rosalind Joffe 2 Comments

My apologies for those who received the last few posts in gobbledeygook.  That wasn’t my intention (if you didn’t read the last post about intention, you should!) But as we know, even with the “right” intentions, things can still mess us up. Technology does it. And so does chronic illness. Have you found that whenRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Intention — how does it help working with chronic illness?

November 5, 2007 by Rosalind Joffe 1 Comment

Ellen (not her real name) is looking at surgery, post op and return to work and trying to figure out. She asked me, “With my own tension and lost time here, what can I do so I don’t crash at work?” Ahh, a coaching moment…. Intention: determination to act in a certain way. Ellen usedRead More

Filed Under: Attitude, Working with chronic illness

Let's hear it for a success story! Are you "… speaking Japanese"?

October 31, 2007 by Rosalind Joffe Leave a Comment

I’m still waiting to get some responses to “Daddy Days”. Doesn’t anyone have a positive story to share? Oh, come on Here’s a tidbit from my story. It took me 20 years, but I finally got it right. I could work, stay healthy and DO what I love — this business, cicoach.com. I get toRead More

Filed Under: Musings on LIfe with Chronic Illness, Working with chronic illness

Daddy days? How about chronic illness days?

October 28, 2007 by Rosalind Joffe 5 Comments

If Dad’s can make schedule adjustments without it hurting career, can people with chronic illness? YES — I work with people so they can do this — and they can. But it’s not easy. Matt Hutter and family Last week, Wall Street Journal Columnist, Sue Shellenbarger wrote, Taking a Career Timeout to allow for DaddyRead More

Filed Under: Working for others, Working with chronic illness

Oprah: Need a career coach now that you have a chronic illness?

October 25, 2007 by Rosalind Joffe 5 Comments

Amy T, at Diabetes Mine, diabetes (and other diseases) info gold mine made me aware ofOprah’s newest interest: the thyroid. Oprah… trend setter or trend spotter? In October issue of “O” , Oprah disclosed her “thyroid condition”. When Oprah learned of this diagnosis (oh, so that’s why I’ve been tired and gained so much weight!),Read More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Coaching to "win" — can you beat it?

October 23, 2007 by Rosalind Joffe 2 Comments

I have to share a web site with you, Beat Chronic Illness.com. Just because I’m intrigued with the concept of “beating” this thing called chronic illness. I don’t talk with my clients about the illness part of their issues much — but we do talk a lot about their attitude. Nicole seems convinced that whatRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Chronic pain: we don't have to fix it.

October 22, 2007 by Rosalind Joffe 3 Comments

I saw my “Healthy Body Coach” today. O.K – she’s not a coach, she’s a physical therapist. But, she’s coach-like in her approach. I went because I’d been having pain, first in my arm,then hip, legs and my neck. I’d been pain free for a few months so I thought I must have done somethingRead More

Filed Under: Attitude, Health Info, Working with chronic illness

Can people with chronic illness be productive workers? YES!

October 19, 2007 by Rosalind Joffe 6 Comments

I’ve written about needing an oar to keep swimming. I offer those oars to people when I can — as a career coach focusing on people with chronic illness. And, I gotta’ tell you that at least once a day, I talk to someone who is drowning just trying to get to work, never mindRead More

Filed Under: Career Development, Health Info, Working for others, Working with chronic illness

Exercise – You don't have to love it.

October 17, 2007 by Rosalind Joffe 4 Comments

We know that it’s impossible to find time to exercise when you hold down a job and are way tired from chronic illness symptoms. (Never mind walking the dog and carpooling the kids.) No, you’re not superman (or woman). Clients tell me that they can’t get up even earlier or come home later to goRead More

Filed Under: Health Info, Working with chronic illness

Chronic Illness — we need conversations! It's not rocket science.

October 14, 2007 by Rosalind Joffe 6 Comments

According to a survey of 1,000 people, (thank you Amy at Diabetes Mine for the direct link) 82% of respondents said they knew someone with a chronic illness but only 34 percent were likely to suggest ways for this person to better manage their care. Well, hurray for the 66% who know better than toRead More

Filed Under: Talking about it

Sen. Pete Domenici — is he disabled, just a little incapable or merely living with a diagnosis?

October 11, 2007 by Rosalind Joffe 1 Comment

Chronic illness rears its ugly head again. This time, it’s a U.S. Senator. Senator Pete Domenici of New Mexico announced that he won’t run for re election because he has Frontotemporal disease. It usually appears in people younger than the 75 year old senator. A client of mine, 46, has it and she continues toRead More

Filed Under: Health Info, Working with chronic illness

Getting it right – are you making yourself clear?

October 10, 2007 by Rosalind Joffe Leave a Comment

I was speaking to the State Street Global, Disability Awareness Group yesterday (I’ll bet you didn’t know that it’s National Employment Disability Awareness month?) and I got this question:    “I often think that I’ve explained myself (why I can’t do something) only to find people are angry or disappointed with me. How do IRead More

Filed Under: Talking about it

Poor me

October 7, 2007 by Rosalind Joffe 2 Comments

There’s no such thing as fair… in love, war or office politics. Certainly, not in health. When you don’t have good health, nothing good comes from thinking about fairness. A client, in a burst of “honest disclosure” recently shared with her boss that it’s not fair that she got MS at this point in herRead More

Filed Under: Attitude, Talking about it, Working with chronic illness

Who is managing your health, anyway?

October 3, 2007 by Rosalind Joffe 8 Comments

I spend a lot of my day talking with people who are either employed or are looking to be employed again, quickly. As a coach, my job is to ask good questions and be sympathetic.  But, if I hear one more person tell me that she has to keep her job (or take a job)Read More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Transition… It can be a tough balancing act

September 30, 2007 by Rosalind Joffe 3 Comments

Great post on one of my favorite bloggers, Pamela Slim / Escape from Cubicle Nation. 8 Strategies to get the most from painful or awkward life transitions . About to have her 3rd baby, she offers great ideas for going through those times when you’re experiencing change and it puts you off balance. She evenRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Can we talk .. more?

September 25, 2007 by Rosalind Joffe Leave a Comment

My post from Sept. 13, Talking About it Does Help, got a lively discussion going. What should you, can you, “rightfully” and thoughtfully, expect from others when you bring up the big CI (chronic illness). Nope, no answers … you knew I’d say that 🙂 … but I do have another suggestion. I wrote aboutRead More

Filed Under: Talking about it, Working with chronic illness

Riding the waves? Here's an oar

September 23, 2007 by Rosalind Joffe 4 Comments

This morning, I had an epiphany as I drank my latte (mmm – gotta’ love my nespresso). Looking at a picture on my desk taken 15 years ago– our family holiday photo — I saw a woman with a prednisone moon face, looking tired and frail. I had two kids in elementary school, was 43,Read More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness, Young with Health Problems

Skip the friend stuff … Throw me an oar.

September 19, 2007 by Rosalind Joffe 3 Comments

I just got an email from a chronic illness coach colleague (yes, I am not the only one!) about an upcoming “offering”. The announcement read: Hear from this “warm and compassionate” coach… I cringed when I read those words, warm and compassionate. Who cares about warmth and compassion? I don’t know about you, but IRead More

Filed Under: Working with chronic illness

When we can't do the job we used to do

September 16, 2007 by Rosalind Joffe 2 Comments

What happens when you can no longer do the work that you’d always done and were successful in doing  — and you can’t figure out a job that you can do?   The answer?  Fear.  Especially if you are your sole source of support. Unless you have an unusual private disability plan (and that’s if youRead More

Filed Under: Attitude, Working with chronic illness

Chronic illness — talking about it does help

September 13, 2007 by Rosalind Joffe 7 Comments

What you say is just as important as what you don’t say. And, it’s even more important when you want to be successful in your work and you live with invisible AND chronic illness. Communication is king. I have a hunch that not many people would disagree me with me about this. But, I wishRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

Master the fundamentals and you don't have to be invisible at work living with chronic illness

September 9, 2007 by Rosalind Joffe Leave a Comment

I coach, I write and think about this topic: how can a person live as full a life as possible when living with invisible chronic illness?   Yup, people do tell me me that I can get to be a bore, always referring to this.  It’s become a reference point for me for most ofRead More

Filed Under: Talking about it, Working with chronic illness

Even a doctor with scleroderma can find symtoms demoralizing

September 6, 2007 by Rosalind Joffe 2 Comments

A coaching client asked me whether she should start planning her application for Social Security Disabilty benefits. My client, a primary care physician who has three children and a very busy practice, lives with scleroderma. At 50, the disease is getting worse (some days she has trouble holding a pen), her energy is slowing downRead More

Filed Under: Attitude, Working with chronic illness

Recommendations to Social Security Administration

September 5, 2007 by Rosalind Joffe Leave a Comment

Last summer, I was honored (and a little intimidated by my colleagues) to participate in a process to advise the Social Security Administration on ssdi and ssi benefits. Hold your applause. They’re not giving away more money (did you know that SSA gives out 120 billion dollars in benefits) — just trying to make theRead More

Filed Under: Health Info, Working for others, Working with chronic illness, Young with Health Problems

Herniated stomas – a surgery option

September 4, 2007 by Rosalind Joffe 5 Comments

I just visited a surgeon. Not the one who performed the original ileostomy ten years ago but his associate, a young woman whom I thought I’d feel most comfortable discussing the current situation. I have what looks to be a herniated stoma (a hernia in the stoma) and I wanted to find out what thisRead More

Filed Under: Health Info

Working with chronic pain – it beats not working with chronic pain.

September 2, 2007 by Rosalind Joffe 12 Comments

Work Issues and Pain. “How does pain affect your work life? Are you able to work? Has pain forced you to give up work?” I was invited to address a topic related to these questions, along with several other people who blog about pain, by the blog, How To Cope With Pain. You can seeRead More

Filed Under: Attitude, Working with chronic illness

Former surgeon general urges presidential candidates should make prevention of chronic illness a priority

August 30, 2007 by Rosalind Joffe Leave a Comment

Okay – he’s no longer surgeon general (2002-2006) but hooray! Dr. Richard Carmon speaking at University of South Carolina’s Arnold School of Public Health “called on current and future policy makers to focus on chronic disease prevention.” The article goes on to say that (and I”m quoting it all here): “nine out of 10 AmericansRead More

Filed Under: Health Info

September – Did you know that it's invisible chronic illness month

August 28, 2007 by Rosalind Joffe Leave a Comment

Lots of stuff going on in the next month for those of us living with invisible chronic illness, thanks to the work of rest ministries.org. What makes this great? Well, in today’s world of rapid fire information and the power of the internet, this information sharing can only help those of us who want toRead More

Filed Under: Talking about it, Working for others, Working with chronic illness

A coach can be good for your health

August 27, 2007 by Rosalind Joffe 2 Comments

I’m pleased and proud to tell you that award winning blogger, Amy Tenderich, Diabetes Mine   thinks so.  That’s what she writes, in her article, Hey Coach, So What if I’m Sick?  Her site is great, even if you don’t have diabetes. It’s chock full of resources and information — and just Amy-talk. Which is alwaysRead More

Filed Under: Working with chronic illness

Girlfriend entrepreneurs: check out this list

August 26, 2007 by Rosalind Joffe 2 Comments

I told you that one of my favorite new business related blogs is Pamela Slim’s, Escape from Cubicle Nation. Thanks to Pamela for letting us know about Bootstrapper’s blog post (do you get the feeling that bloggers are only talking to bloggers here?), The Women Entrepreneurs Toolbox: 100 Networking Resources, Guides and Links. This isRead More

Filed Under: Working with chronic illness

And here's another take on stress and MS

August 23, 2007 by Rosalind Joffe 1 Comment

A reader, Jackie from Connecticut, sent me this link to an article in WedMD, “Stress,Violence May Make MS worse”. Geez. Are you surprised that violence would be bad for someone’s health? Or that it would aggravate an already weakened body? I’m not. But the interesting item in the story was the reference to their choiceRead More

Filed Under: Attitude, Health Info, Working with chronic illness

The news that stress can make your disease worse … can be harmful to your health

August 22, 2007 by Rosalind Joffe 4 Comments

Yikes. Now it’s proven: stress makes neurodegenerative disease worse. That means that the person who responded, “You have to make sure you don’t get stressed” when I told her that I have multiple sclerosis (MS) – was right??? Nope – because you can’t prevent getting stressed. It’s a daily, random, minute to minute experience. That’sRead More

Filed Under: Health Info

Bad vibes using Handicapped Parking … with not-visible disability

August 21, 2007 by Rosalind Joffe 6 Comments

At 6:30am, I piled my body into my husband’s mini cooper to take him to work (my car was being fixed). I’d not driven it before and the big surprise came when I remembered why I no longer get a manual transmission car. Oh, that’s right. I have very numb feet and can’t feel aRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Nuggets of info for thriving in the workplace with chronic illness

August 19, 2007 by Rosalind Joffe 2 Comments

I know that bloggers like information so I’ve added more sites to the left columns. I’m also going to highlight two tools that I think are worth knowing about. I recently learned about doing a Body Scan and I think it’s a very cool tool that helps you learn more about your body. And, ifRead More

Filed Under: Health Info, Working with chronic illness

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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2025 Rosalind Joffe, ciCoach | Photograph by Meri Bond