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Cancer – why working is important to your health.

April 5, 2007 by Rosalind Joffe 1 Comment

The big C, cancer, has been getting a lot of press lately. Everyone seems to be weighing in on the good, the bad and the ugly decisions that Elizabeth & John Edwards are making. I think that one encouraging piece of news is that cancer is being discussed as a chronic illness and what living with chronic illness can mean. (Read Andrew Sullivan’s column in the London Times.)
I’m glad that Elizabeth Edwards will still have her job in her husband’s campaign during the chemo therapy — but for most people, that’s not always the case. Cancer “survivors” can find that they’re weak for a long time after therapy and that people can lose sympathy and drop support if you can’t return to your “old work self”.
For those of us with illnesses that slowly eat away at our strength and our abilities, it can feel nearly impossible to find a way to feel valuable and to contribute in the workforce. And, I don’t believe that you should HAVE to come to peace with this – that the heroic thing to do is to spend time meditating on how to make ourselves well again. Now, I don’t have anything against that (I spent time doing it in my own life). But I think that it should be a choice. For some of us, being active and purposeful at work is the best medicine we can find. Unfortunately, in this highly productive work culture, there isn’t adequate space for the woman or man who can’t be 110%. And, that means, too often, that living with a dis abling chronic illness (meaning it makes you unable to do something) can mean that you are considered unable (by others and by yourself) to do much of anything. What a waste…

Rosalind

Filed Under: Health Info, Working with chronic illness

Gone are the days – life in remission

April 2, 2007 by Rosalind Joffe 1 Comment

Gone are the days when I had to run to a bathroom when out shopping at Home Depot with my husband – or anywhere else. Gone are the days when I couldn’t commit to anything before 9 am – but I still prefer not to. Gone are the days of working from bed instead ofRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness

Our Dogs: Making it "normal" (when you're a family with chronic illness)

March 26, 2007 by Rosalind Joffe 3 Comments

Fifteen years ago, we brought home a small white Puppy with one ear that didn’t stand up straight. Ace was a West Highland Terrier and he was the alpha of the pack. Our daughters were 4 & 7 and after living with multiple sclerosis for years, I’d developed ulcerative colitis that left me with highRead More

Filed Under: Musings on LIfe with Chronic Illness

Living with our diagnosis – Louise's story

March 23, 2007 by Rosalind Joffe 1 Comment

Louise, who was diagnosed with Rheumatoid Arthritis at age 21, shared her journey with me. Her first doctor tended to minimize her suffering, telling her it wasn’t so bad. She thought he was nuts but didn’t speak up for herself. When her chiropractor referred her to an allergist a couple of years later she wasRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Living with chronic illness – top ten positives

March 20, 2007 by Rosalind Joffe Leave a Comment

This post has been submitted by a colleague, Nicole Matoushek. Thanks, Nicole, for offering your perspective! As ridiculous as this sounds, in David Letterman fashion, I have created my own top ten list of the positives of the chronic illness experience. 10) Your pharmacist knows you by name. 9) Otherwise complete strangers are your instantRead More

Filed Under: Musings on LIfe with Chronic Illness, Talking about it

Chronic fatigue isn't "life threatening" but it can threaten how we live our lives.

March 12, 2007 by Rosalind Joffe 4 Comments

In her comment to the post, Gone for treatment back by 2:00, Nancy wrote that it is helpful to remember that chronic fatigue won’t kill us. My physical therapist put it another way, saying, “It’s just pain – that’s all”. I knew that she wasn’t minimizing it, just trying to help me from worrying aboutRead More

Filed Under: Musings on LIfe with Chronic Illness

Are we too sick to dream?

March 10, 2007 by Rosalind Joffe Leave a Comment

I was sent links to a couple of video marketing movies (I think that’s what they’re called.) They both got my attention but one caused me to think about the readers of this blog, and those not yet here. The movie was about dreaming and it asked many questions. Are we too young, too old,Read More

Filed Under: Musings on LIfe with Chronic Illness

Workplace flexibility …for the chronically ill? I doubt it.

March 6, 2007 by Rosalind Joffe 3 Comments

There was recently an article in The Boston Globe that noted the difficulties for women in science and medicine to stay “on career track” during their child rearing years. The article cited institutions that are trying to make the challenges easier. As a mother who faced a lack of support within the institutions in whichRead More

Filed Under: Working with chronic illness

Gone for treatments – back by 2

March 1, 2007 by Rosalind Joffe 3 Comments

Isn’t it just that way for some of us? Headstrong and determined, we’re not going to let this illness stop us. Sure, we’ll work around it, but stop us? Never! I received an interesting article from an old issue of Pink Magazine yesterday. The title is “Fever Pitch: Health on the Line but Working Overtime?”Read More

Filed Under: Working with chronic illness

And the winner is …

February 26, 2007 by Rosalind Joffe 3 Comments

O.K., I’m a bah humbug. I’m not a fan of the Academy Awards. I gotta’ admit, though, I do like looking at the gowns – but that’s about it. It seems to me that its’ much ado about not much. Don’t get me wrong. There’s nothing I’d rather do than watch a movie. I usedRead More

Filed Under: Musings on LIfe with Chronic Illness

Business from bed

February 23, 2007 by Rosalind Joffe 1 Comment

Thank goodness for self-employment and businesses that can be run using a phone and laptop. During the times when I was dealing with the more difficult flare ups I made all sorts of adjustments to both take care of myself and get my work done. Looking back, I would have rated my body a 4Read More

Filed Under: Working with chronic illness

Talking in Normal

February 20, 2007 by Rosalind Joffe 1 Comment

My husband and I are moving from the house in which our girls, now ages 19 and 22 years, were born and raised.  Recently a friend videotaped their memories of living here.   I was struck that neither mentioned anything  about their mother when she was unable to lift herself from bed, pick them upRead More

Filed Under: Talking about it

Keeping your job – an exercise in leadership

February 17, 2007 by Rosalind Joffe 2 Comments

I’ve been thinking a bit about what it takes to regain some control over your life and your future when you’ve been derailed by your body. Truthfully, it’s the same with any unexpected circumstance that suddenly changes everything. But we’re all here because our bodies have presented us with some life-altering challenges. I’ve lost twoRead More

Filed Under: Musings on LIfe with Chronic Illness, Working for others, Working with chronic illness

Talking about chronic illness – what's enough?

February 12, 2007 by Rosalind Joffe 6 Comments

A client, I’ll call her Jane, was describing her feelings of isolation ever since she developed chronic fatigue syndrome (almost 3 years ago). She finds that as time goes on, she doesn’t want to talk about the illness or how she feels to anyone. Whether it’s a casual acquaintance a friend or family, Jane hasRead More

Filed Under: Talking about it

Could your diagnosis start important conversations?

February 9, 2007 by Rosalind Joffe Leave a Comment

Once in a while I have occasion to tell someone new about my experience living and working with symptoms associated with Crohn’s Disease. These days, it comes up when telling someone about this blog. One thing I love about having these conversations is the safety it creates for others to talk about something in theirRead More

Filed Under: Talking about it

Repeat after me: I am not this illness

February 5, 2007 by Rosalind Joffe 2 Comments

I’d been drinking white tea (which is like green tea but “softer) all afternoon in an effort to keep my mind alert and my body less chilled.  It was 4:00pm and I was weary and cold. I found myself wondering:  What’s causing this? Is it the weather – 12 degrees with a wind chill that’sRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Working with chronic illness

Searching to be believed

January 29, 2007 by Rosalind Joffe 2 Comments

Twenty six years ago. First there were multiple urinary infections. Then numbness that slowly spread from my left elbow to my thumb. I visited numerous doctors who administered many tests. Nothing showed up and there was nothing they could do for me, they told me. I visited many alternative health care practitioners and spent lotsRead More

Filed Under: Musings on LIfe with Chronic Illness

Searching for a diagnosis

January 23, 2007 by Rosalind Joffe 2 Comments

Twenty six years ago. First repeated urinary infections. Then numbness from my left elbow to my thumb. I visited numerous doctors who administered multiple tests. But nothing showed up and there was nothing they could do for me, they told me. I visited many alternative health care practitioners and spent lots of time and moneyRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness

I'm so tired I can't sleep

January 19, 2007 by Rosalind Joffe 5 Comments

This week has been a difficult one. The January renewal energy, acceleration in my level of activity and some discomfort associated with a recent medical procedure are in conflict! I want to sleep but I can’t get completely comfortable for the entire night. I want to be productive, but I’m tired. So I get upRead More

Filed Under: Health Info, Musings on LIfe with Chronic Illness, Working with chronic illness

Disclosure – when is the right time?

January 15, 2007 by Rosalind Joffe Leave a Comment

I’ve lived with chronic illness for 28 years and I still stumble (at least in my head) after I’ve disclosed this to someone. For most of these years, the subject usually came up early in a conversation, often in the context of what I couldn’t do. But, I’ve been fortunate. The ulcerative colitis was curedRead More

Filed Under: Talking about it

Illness changes the rules

January 10, 2007 by Rosalind Joffe 1 Comment

Without a doubt, chronic illness changes your view of your world and your life. It quite literally changes your physical capabilities – at least for the short term – and most likely your perception of yourself. Depending on your orientation to the world before the onset of your symptoms – as one reader recently commentedRead More

Filed Under: Musings on LIfe with Chronic Illness

Illness — so it doesn't become who we are.

January 8, 2007 by Rosalind Joffe 2 Comments

My husband, children and I are lucky that all of the grandparents, in their 80’s, are still alive. My parents have had severe chronic illnesses for the past 10 years, have witnessed the incessant loss of contemporaries, family and friends, and are now confronting their inability to take care of themselves. It’s painful and sadRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

What You Want Others to Know – but have trouble saying

January 5, 2007 by Rosalind Joffe 1 Comment

This is a note from a fellow traveler, a girlfriend, like us. By the way, the article she’s referring to is my recent newsletter – you can subscribe on my website Dear Rosalind, I’ve owned a business since 1979. I’ve always been known as the go-to person by my partners, employees, clients and fellow volunteersRead More

Filed Under: Working with chronic illness

Are you hiding behind your illness?

January 4, 2007 by Rosalind Joffe 5 Comments

Today I’m feeling a little righteous. As a women who stayed engaged and in the workforce through the ups and downs of a chronic illness for over 14 years, and juggling everything else that comes with living life – including raising a child – I’m appalled to learn that my husband’s ex-wife is using herRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

So, why keep working?

December 31, 2006 by Rosalind Joffe 5 Comments

Benchmarks can help a person think about your life: what’s happened to you, the choices you’ve made and the results of those choices. When I was younger (say under 30), this was something other people talked about but I didn’t really “get it”. Not anymore. New Year’s, my birthday … even mother’s day, I findRead More

Filed Under: Working with chronic illness

Honoring your needs – the holidays and beyond

December 27, 2006 by Rosalind Joffe Leave a Comment

The holidays are stressful enough for people in good health. They’re naturally accompanied my additional challenges when you’re not feeling well. Though I’m in remission and enjoying robust health these days I can remember days when I’d attend our family gatherings but have to lie very low in order to survive. I always felt aRead More

Filed Under: Musings on LIfe with Chronic Illness

Real people, real "working"

December 25, 2006 by Rosalind Joffe Leave a Comment

Hi Rosalind, After my call with you, I was so motivated to make my job demands up front without explanation (telecommuting as needed, 1 day off, etc.). The president and hiring manager seemed confused by it, but didn’t ask too many questions and I happily accepted their job offer. Just hours after the phone call,Read More

Filed Under: Talking about it, Working for others, Working with chronic illness

It's not small talk

December 22, 2006 by Rosalind Joffe Leave a Comment

Holiday parties with the inevitable: “How are you? What’s new?” Do I say, “Well, lately I’ve been plagued with nocturnal enuresis, you know,  that night bed-wetting associated with bladder dysfunction from MS “?  I don’t think so. What can you say when your life isn’t a one liner?  And even if you could fit itRead More

Filed Under: Talking about it

When you just have to keep working – and it ain't easy.

December 18, 2006 by Rosalind Joffe 7 Comments

I’m writing this first post lying down. I’ve got my tools: a laptop that allows me to keep working, an ice pack that eases the back spasms and antibiotics to treat the urinary tract infection (UTI) that seems to happen with a bad back. Did I need this reminder of my invisible and sometimes disablingRead More

Filed Under: Working with chronic illness

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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2025 Rosalind Joffe, ciCoach | Photograph by Meri Bond