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Archives for 2015

Are you ‘flogging a dead horse’?

December 11, 2015 by Rosalind Joffe 2 Comments

My good friend, S,  called as she was sitting in traffic on her way to work.  This wasn’t unusual.  But what was different was how upset she was because she had a bad cold.  That evening, she was supposed to go her most important client’s holiday party and the next morning she had to give a key sales presentation.  She said that she was thinking of not going to the party but  worried about what her client would think of her. Later that morning, she emailed that she’d decided to go – – she’d just push herself, right?  At the end of the day, she texted that she felt horrible, her nose was a dripping mess, and there was no way she could make the party.  That evening, she called, quite depressed.   “Maybe it’s because I’m over 60 and can’t push the way I used to?  I feel like a loser. It’s the holidays – too much to do and too many expectations.  Now I know what you must feel when you don’t feel well and don’t show up for things.”   

Yup, the holiday season ratchets up expectations.  There are events to attend, food to cook, gifts to buy and the joy you’re expected to show.  But do you find that when your expectations exceed reality, disappointment sets in?  This is true for anyone who typically meets commitments.  

But (there’s always a ‘but’, isn’t there?) if you’re living with chronically difficult health, we’re living in a constant state of setting expectation and experiencing disappointment.  We don’t need holidays to remind us that we’re not reliable.

I thought of this when my client, T, described pushing herself to keep working rather than take the nap she desperately needed.  She said, “It’s like I’m ‘flogging a dead horse‘ – – my mind wants one thing but my body needs another.  When I finally realize I can’t go on,  I think I’m lazy — like that horse. I’m wishing that if I just keep pushing it, that horse will  get up and do the work the way it’s supposed to.”  Tearfully she said that the worst part of this is realizing how the disappointment in herself makes her afraid to take on more work.  

I asked T what she thought would help her change this behavior?  “Acceptance,” she said.  She’d attended a seminar on living with chronic pain where they spoke about the need for acceptance.  She’d googled and found definitions which led her to think, “... if only I could accept the pain, I wouldn’t try to work beyond my limits.  I’d be happier and healthier.”

Could be.  But I worry that there’s a growing perception among those living with chronically difficult health (and those who don’t but give advice to those of us who do) that the key to our happiness is in accepting what we live with.  And that this is relatively easy to attain.  But I think that for most of us the notion of acceptance is vague and hard to pin down. It also sounds finite, like a destination where we’ll arrive and stay.   

Another way to view this is through the lens of resilience.  When we’re engaged in life we  live with hope, set expectation, and tolerate disappointment.  Hope leads us to set expectations, maybe a big one such as finishing a major work project or a small one such as going food shopping today.  Disappointment happens when we don’t meet a commitment because of our unpredictable health.  Hope feels good.  Disappointment is painful and difficult to tolerate.  We typically judge and think badly of ourselves for not meeting that commitment and that keeps us from bouncing back with resilience. It becomes a soupy mess that we just want to avoid. 

When bad health gets in the way and you can’t make a commitment, you will be disappointed.  That’s inevitable.  But can you find that resilient place that you call hope?  Can you remind yourself that tomorrow offers another opportunity to create and meet a new commitment?

Looking for more ideas on setting expectations and responding when you can’t meet them?  “Make It Happen” in my Guidebook Series addresses this and more.

 

 

Filed Under: Attitude, Working with chronic illness

What Do You Say When You’re ‘Back in the Game’?

November 19, 2015 by Rosalind Joffe 2 Comments

It happens easily and too often.  You try to explain that you can’t do something (that you could do until now) and the blank stares, questions or snide comments leave you feeling isolated, frustrated or even guilty.  You know they’re wondering, “But you look the same – -what’s changed?”   Or maybe you’ve already said you’re not asRead More

Filed Under: Talking about it

Does the ‘Positive Thinking’ Message Get You Down?

October 29, 2015 by Rosalind Joffe 6 Comments

I wonder if  anyone actually believes that positive thinking or stress reduction techniques can cure mind numbing pain or fatigue?  Or is it just blind desire to think that every ailment has a cure? My client (I’ll call her Sally) sent me this article in despair, Chronic Fatigue Syndrome sufferers ‘can overcome symptoms of ME with positive thinking and exercise‘ . Read More

Filed Under: Attitude, Musings on LIfe with Chronic Illness, Talking about it, Working with chronic illness

What is your lost time worth?

October 9, 2015 by Rosalind Joffe 5 Comments

I’ve emerged from 4 months of debilitating illness.  Searching for a diagnosis (tests, procedures, office appointments) and pursuing treatment plans was time consuming and depressing.  Naturally, I became less productive as I became increasingly worn out.   Then I got lucky and was cured by surgery that removed a massive but benign renal cyst.  After all of these yearsRead More

Filed Under: Attitude, Working with chronic illness

Practice can make change if not perfection

September 25, 2015 by Rosalind Joffe Leave a Comment

It’s hard to change old habits.  Just ask my dog, Charlotte.  She’s 55 lbs of pure muscle and has a long standing and dangerous habit of lunging with a deep growl when we meet another dog who is also on-leash during our daily walks.  The thing is that Charlotte’s a sweetheart in all other situations (she’s a star playing withRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Tennis, . . . . anyone?

September 10, 2015 by Rosalind Joffe 4 Comments

I’m not a tennis fan and typically get quickly bored watching the game. But over the past few weeks, Serena Williams has grabbed my attention. I’m fascinated by her energy, facial expressions and her game. FYI – I’ve been following the human interest story of Venus and her younger sister, Serena, over the years. Growing up in Compton, CA, they becameRead More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness, Talking about it, Working with chronic illness

Are you nuts to disclose chronic illness before starting the job?

August 26, 2015 by Rosalind Joffe 3 Comments

I can’t count how many times a reporter’s first question is,  “Should someone with a chronic illness disclose in the interview process?”   They  seem to think it’s the most pressing issue on a reader’s mind.  Maybe so. But focusing on this question alone confuses the issue. Even for people with no limitations on their work lives, the interview process can feelRead More

Filed Under: BOOK - Women Work and Autoimmune Disease, Career Development, Job hunting, Talking about it, Working for others, Working with chronic illness

Are you sick of prioritizing because you’re sick?

August 6, 2015 by Rosalind Joffe Leave a Comment

Over the past few months, I haven’t published as regularly as I typically do.  Which, in case you haven’t noticed, is typically twice monthly.   Honestly – I’m quite sure that not one of you has given this a thought.  So why mention it?   Because it’s a point of pride for me to post regularly and to meet allRead More

Filed Under: Working for others, Working with chronic illness

Do you slide on that slippery slope from fearLESS to fearFUL?

July 14, 2015 by Rosalind Joffe 6 Comments

I quite literally bumped into a friend I hadn’t seen since  college.  After sharing the big data points in our lives, she said,  “I remember you as fearless.   Remember when we  met a guy who flew a glider plane and you were the one who took a ride?  And then you hitch-hiked to Canada because you’d never been and spent a summer rafting white water.  Are youRead More

Filed Under: Attitude

Changing Muscle Memory Takes Practice and then More Practice

June 17, 2015 by Rosalind Joffe 2 Comments

I heard her frustration and disappointment. She’d almost cancelled our call, lost in the worry that she wasn’t getting anywhere and couldn’t change.  I empathized as I felt her pain.  But I’ve been in this place myself and I’ve learned that what she really needs is encouragement to keep practicing. Even magic tricks require hours of practice. And we aren’t working on pulling rabbits out ofRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

How do you respond to the healthcare time suck?

May 26, 2015 by Rosalind Joffe 8 Comments

Do endless appointments to manage your chronically challenging health wreck havoc on your schedule?  If you’re saying YES,  let me assure you that you’re not alone. Work and personal life are inevitably disrupted while you fit your life into other people’s schedules.   I’ve lost count of how many people have told me they can’t hold a job because of this.  And now, after 35+ years of officeRead More

Filed Under: Attitude, Health Info, Working with chronic illness

3 Reasons Why a Diagnosis Is Not the Holy Grail

May 6, 2015 by Rosalind Joffe 8 Comments

Listening to her describe a recurrent dream in which a test finally uncovers the illness explaining her extreme fatigue, I felt overcome by her sadness.  Thirty five years ago, after three years searching for a diagnosis, I was almost joyous to  get a diagnosis of multiple sclerosis.  It took me a few years of living with the now named diseaseRead More

Filed Under: Attitude, Talking about it

What’s on your reading list?

April 24, 2015 by Rosalind Joffe 2 Comments

I find myself frequently recommending books both to support the coaching I do and when people email asking for ideas.  My bookshelf is overflowing  (the only hardcopy books I still buy) .  I thought I’d share the ones that I find have staying power.  This is hardly an exhaustive list–  just some highlights. In the Kingdom of the Sick:Read More

Filed Under: Uncategorized

How are you turning lymes into lemonade?

April 6, 2015 by Rosalind Joffe 2 Comments

When a friend of Emily Levy’s wrote telling me about Emily and her efforts to start a business based on her own experience living with illness, I knew that this would be a good match.  Emily  is the CEO and CO-Founder of PICCPerfect and a student at Babson College. She has been suffering from ChronicRead More

Filed Under: Attitude, Starting a business

Do you ride the roller coaster of symptoms?

March 19, 2015 by Rosalind Joffe 5 Comments

Do you find that living with flaring symptoms from a chronic health condition feels like riding a roller coaster?  I do and listening to clients, I know I’m not alone.  I find it helps them when I remind them that things change and even if today or this month is bad, it’s not a static state.  Sometimes the changesRead More

Filed Under: Attitude, Health Info, Musings on LIfe with Chronic Illness

Four steps to navigate back to balance

March 5, 2015 by Rosalind Joffe 8 Comments

I’m a planner.  I like the act of planning and like living with plans.  I get a big kick out of writing and reviewing my yearly business plan.  My husband and I have spent many long car rides planning the big stuff (when we’d buy our first home, start a family, move to a different part ofRead More

Filed Under: Attitude, Working with chronic illness

Are You Choosing Wisely?

February 11, 2015 by Rosalind Joffe 2 Comments

If you’re living with a chronic health condition, it’s likely you’re a frequent consumer of healthcare services.   When I was a child in the mid 20th c., doctors asked few questions, were supposed to tell us what was wrong, and we expected a prescription to fix it.  By 1980, when I was diagnosed with my first chronic illness,Read More

Filed Under: Health Info

Can we talk about something other than stress?

January 29, 2015 by Rosalind Joffe 8 Comments

I’d be rich if I had  a quarter for every conversation in which a client brought up fear of stress and the worry that it will make her illness worse. But is that the most effective use of time and energy? According to Medicine Net ,  stress  “….is a physical, mental, or emotional factor that causes bodily or mental tension.  Stresses can beRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

Can you achieve balance and extraordinary?

January 15, 2015 by Rosalind Joffe 2 Comments

Do you  find yourself thinking at random times about something you’ve just read, seen or heard?   A phrase pops into your head as you’re fixing a meal, taking a shower or walking the dog  (ok, it’s true, I’m bored when I walk my dog) .  That’s just what happened to me after reading,  “The Unbreakable Laura Hillenbrand” in theRead More

Filed Under: Attitude, Musings on LIfe with Chronic Illness

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Recent Posts

  • Whose shoulders do you stand on while living with illness?
  • Are You Talking About Mental Illness?
  • Are You Feeling Desperate for a Diagnosis?
  • Is this new job market good for us, the chronically ill?
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Rosalind Joffe

rosalind@cicoach.com

617.969.1930
How can I help you?
I specialize in working with professionals living with chronic health conditions who want to continue to thrive, not just survive. Learn more by clicking here.
Women, Work and
Autoimmune Disease: Keep Working Girlfriend!

by Rosalind Joffe
with Joan Friedlander
© 2025 Rosalind Joffe, ciCoach | Photograph by Meri Bond