A friend, Kelly Packowski (she and her husband have a foundation, The Kelly Packowski Foundation for MS, changing one life at a time), has had a tough spring with multiple sclerosis symptoms and she’s trying a new drug therapy that requires a surgical procedure to put a port-a-cath in her chest. I emailed her to send my hugs. I have to share her response – it’s so right on!
Things are getting back to normal. Having the port placed was really not that bad. I am having an infusion of a new drug called Zenepax on Tuesday. I have only had this drug once and for the first month I have to have an infusion every two weeks. After the first month the infusions are monthly. It is hard to say if there are any side effects to this drug considering I only had it once. I was very tired after my first infusion but my doctor said that should get better once my body adjusts. My parents have been staying with us off and on for the last few months and are a tremendous help. As always, I feel very blessed to have John and the kids, who are a constant source of strength for me.
Things could be worse and again I feel lucky to have the support of all my friends and family.
Staying positive has been difficult and for a while I was not positive at all, but things are better now and I feel my mental strength, as well as my physical strength, coming back.
I feel that there is no greater medicine than the love and support of those who care about you.
Kelly
And I ask you, isn’t that what we all hope for?
Rosalind
Rosalind
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